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Topic: Why do you have low DAO levels?

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sickofhistamine
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Why do you have low DAO levels?
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Do you take a DAO enzyme?  If so, did that not raise your levels?  Do you have Celiac or Gluten Intolerance by chance?
squiggle wrote:

I just always presumed it was genetic with me because I don't take any medications which block DAO etc. For some people it's temporary when caused by a vitamin deficiency/medicines that block DAO etc, but I don't have those problems and my DAO levels have remained low since I was first diagnosed 5 years ago.

 



-- Edited by sickofhistamine on Wednesday 29th of August 2012 08:30:33 PM

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sickofhistamine
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Has anyone put their finger on why you have low DAO levels?

I have read that long term undiagnosed Celiac can be the cause of someone not being able to make DAO enzymes.  I have a feeling that's part of my problem.

I wondered if that's something anyone else has found?



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squiggle
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I just always presumed it was genetic with me because I don't take any medications which block DAO etc. For some people it's temporary when caused by a vitamin deficiency/medicines that block DAO etc, but I don't have those problems and my DAO levels have remained low since I was first diagnosed 5 years ago.

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M O'K
squiggle
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Hi there, you raise an interesting point, I have only had my DAO levels tested twice, once 5 years ago, before I started taking Dirk's histrelief dao supplement and once last year when it wasn't available. Both times my dao levels were well below normal but it is possible my levels raised when taking the enzyme. I've tried Histame/Daosin but they didn't help me. I don't have celiac or gluten intolerance but it would be interesting to know if others with low dao do.

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admin
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Hi there,

I personally am not celiac. I thought I was because I was reacting badly to bread, which I eventually thought was a yeast issue, but then realised that my body just doesn't like wheat - probably because it's inflammatory.

I second the medicine angle - I was prescribed dozens of meds yearly that block DAO.

Also, there's very likely a genetic link - HNMT (the other enzyme that degrades histamine) can be low in individuals lacking the gene for it. Here's a study on kids who lack the HNMT gene having more adverse reactions to histamine release due to food additives and colouring, especially those with pre-existing ADHD. Read the whole study here.



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I'm the Low Histamine Chef! Please feel free to ask me any questions. Please visit the site for information on Histaminosis/Histamine Intolerance and to download a copy of the Diamine Oxidase Support Recipe Book today!
sickofhistamine
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Yeah, testing while taking something would be the thing to do.    I can't wait for it to come out.  I tried Histame for 11 weeks.  I took one before each meal and after 4 weeks my whole blood histamine levels went from 6665 (range of 180-1800) to 2465.  Then after 11 weeks it went back up to 3650.  I was told that Histame tends to do that, stop working and it clearly did. 
I assume the Histrelief was amazing??  Could you really tell the difference? I'm curious, how often did you take it, before each meal?
squiggle wrote:

Hi there, you raise an interesting point, I have only had my DAO levels tested twice, once 5 years ago, before I started taking Dirk's histrelief dao supplement and once last year when it wasn't available. Both times my dao levels were well below normal but it is possible my levels raised when taking the enzyme. I've tried Histame/Daosin but they didn't help me. I don't have celiac or gluten intolerance but it would be interesting to know if others with low dao do.

 



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sickofhistamine
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Interesting. 

I wish I could figure out what is causing this problem.  Is it the gluten, the viruses, the bacteria or genetic.  I always do better when I can figure out why.



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squiggle
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Histrelief was the first enzyme trial and for me it took many months before I saw a difference in my symptoms. By the second spring I didn't need antihistamines for my hayfever which is usually impossible! I was not lucky enough to be included in the second enzyme trial but I hear that the new powdered supplement is amazing. I can't wait for it to be released either!

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squiggle
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Histrelief was only taken once a day. I don't know how often the new supplement is taken.

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sickofhistamine
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It sounds great.  Thanks for the info.  Now, who could I bribe to get that released asap.  ;>)  I wouldn't even mind taking it before each meal, if it's good but once a day sounds even better.  I can not wait.
squiggle wrote:

Histrelief was the first enzyme trial and for me it took many months before I saw a difference in my symptoms. By the second spring I didn't need antihistamines for my hayfever which is usually impossible! I was not lucky enough to be included in the second enzyme trial but I hear that the new powdered supplement is amazing. I can't wait for it to be released either!

 



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MHB
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Is the new supplement out yet?



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admin
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It isn't :( I don't know what's happening with that. Thing is, I no longer believe any kind of meds are the answer. But I wouldn't, because I don't tolerate them. I was great on this stuff, while on antihistamines. I was able to drink alcohol and eat a lot more. But...then I drank and ate a lot more and that didn't agree with me ones I stopped the antihistamines...

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I'm the Low Histamine Chef! Please feel free to ask me any questions. Please visit the site for information on Histaminosis/Histamine Intolerance and to download a copy of the Diamine Oxidase Support Recipe Book today!
MHB
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Can you let us know when it is? I'm not sure where I will end up on the food--supplement--medicine spectrum yet. Lots of experimenting to go.

Thanks for everything...

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admin
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Of course! You'll be among the first to know :)

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I'm the Low Histamine Chef! Please feel free to ask me any questions. Please visit the site for information on Histaminosis/Histamine Intolerance and to download a copy of the Diamine Oxidase Support Recipe Book today!
Histrelief124
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Hello, I'm new to the site and I apologize if this question is on the offbeat. I am currently taking the HistDAO enzyme by XYMOGEN. Some claim over a period of weeks it does nothing? Others claim this 'lowers the histamine bucket'? What is the right answer please. Also, which brand is the best without all the fillers etc. I live in the U.S. and this histamine issue is as you know very, very challenging.



-- Edited by Histrelief124 on Friday 23rd of August 2013 04:01:03 PM

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Aasem Sulehria
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